{"id":156,"date":"2021-06-11T10:45:18","date_gmt":"2021-06-11T10:45:18","guid":{"rendered":"https:\/\/bf2021.wpengine.com\/?page_id=156"},"modified":"2025-10-21T03:48:54","modified_gmt":"2025-10-21T03:48:54","slug":"welcome-test-page","status":"publish","type":"page","link":"https:\/\/livingwithaddisons.org\/","title":{"rendered":"Living with Addison\u2019s Disease? Find Real Support and Hope."},"content":{"rendered":"<p><img fetchpriority=\"high\" decoding=\"async\" class=\"alignnone wp-image-430\" title=\"\" src=\"http:\/\/livingwithaddisons.org\/wp-content\/uploads\/2024\/04\/Addisons-1-300x125.png\" alt=\"A welcome banner for Living with Addisons Disease community featuring a hopeful patient and caregiver\n\" width=\"792\" height=\"330\" srcset=\"https:\/\/livingwithaddisons.org\/wp-content\/uploads\/2024\/04\/Addisons-1-300x125.png 300w, https:\/\/livingwithaddisons.org\/wp-content\/uploads\/2024\/04\/Addisons-1.png 720w\" sizes=\"(max-width: 792px) 100vw, 792px\" \/><\/p>\n<p><strong>Living with Addison&#8217;s<\/strong>\u00a0is an online patient support community that is powered by <em><strong><a href=\"http:\/\/bensfriends.org\/\" target=\"_blank\" rel=\"noopener\">BensFriends.org<\/a>,<\/strong><\/em> a network of patient support communities for rare diseases. Our mission at <em>Ben\u2019s Friends <\/em>is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.<\/p>\n<p><span style=\"font-weight: 400;\">Addison&#8217;s disease is a disorder that occurs when your body produces insufficient amounts of certain hormones produced by your adrenal glands. In Addison&#8217;s disease, your adrenal glands produce too little cortisol and often insufficient levels of aldosterone as well. One way the body keeps itself in balance is by using chemical messengers called hormones to regulate various functions. &#8230; In Addison&#8217;s disease, called primary adrenal insufficiency, the adrenal glands don&#8217;t make enough of a hormone called cortisol, or less often, a related hormone called aldosterone.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">This site is a virtual community intended to be a safe place for patients and family members as young as age 12, to visit for information, discussion, venting and mutual support. Members come from many backgrounds. Some have a strong religious faith, and others no faith; some are children and others adults, rich and poor, graduate educated or taught by life. Our common denominators are that we share a life journey, and we try to help each other.<\/span><\/p>\n<p style=\"text-align: right;\"><strong><a href=\"http:\/\/livingwithaddisons.org\/?page_id=198\" target=\"_blank\" rel=\"noopener\">Read More&#8230;<\/a><\/strong><\/p>\n<p><iframe title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/YBeRFnJkleU?si=3LCQjvciGOeAmbIj\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<h2 style=\"text-align: left;\"><strong>How is Ben\u2019s Friends Different from Social Media and Other Support Sites?<\/strong><\/h2>\n<p>Our mission at Ben\u2019s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.<\/p>\n<p>We\u2019re interested in you as a person, and in your struggles as a rare disease patient.\u00a0 But we don\u2019t want to know your name or where you live. We won\u2019t even allow you to use your real name when you register for one of our communities. Because when it comes to medical things, anonymity is important in our googly universe.\u00a0 Your information is never shared, and your activity never tracked by adware.<\/p>\n<p>When Ben\u2019s Friends asks for the country and region you live in, that\u2019s in case your fellow members can recommend local resources and help, and so everyone knows what kind of medical system there is where you live.\u00a0 That\u2019s important when it comes to giving and getting support. Because we are all about support, and we\u2019re all in this together..\u00a0<\/p>\n<p>Ben\u2019s Friends: <strong>Safe and Supportive.\u00a0<\/strong><br \/>And <strong>anonymous<\/strong> to keep it that way.<\/p>\n<div>\u00a0<\/div>\n<div>\u00a0<\/div>\n<h2 style=\"text-align: left;\"><b>Why create an account?<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">Posts on the different Ben\u2019s Friends communities can be read by anyone on the internet. You can browse through the different topics and find most of the information you\u2019re looking for but there are many things you won\u2019t be able to do unless you create an account. These include:<\/span><\/p>\n<p><i><span style=\"font-weight: 400;\">Making your own posts<\/span><\/i><span style=\"font-weight: 400;\">. Although you\u2019re able to find useful information just by reading other members\u2019 posts, you might still have a lot of questions in your mind. Either you want to start a new topic to talk about them in detail or you want to reply to a comment on a thread. These won\u2019t be possible unless you create a new user account.<\/span><\/p>\n<p><i><span style=\"font-weight: 400;\">Viewing other members\u2019 profiles<\/span><\/i><span style=\"font-weight: 400;\">. Member profiles include information about the country or region they are from, whether they are a patient or a caregiver, and details about their disease and treatments. Maybe you came across an interesting post and you want to learn more about the member. Or maybe you\u2019re looking for members who are from the same country as you. Having a user account allows you to see other member profiles and find information that may be relevant.\u00a0\u00a0<\/span><\/p>\n<p><i><span style=\"font-weight: 400;\">Sending private messages.<\/span><\/i><span style=\"font-weight: 400;\"> Aside from being able to post publicly and commenting on a thread, having a user account also allows you to send private messages both to other members and moderators. In case you want to discuss a topic only with a specific person, this is possible by sending private messages when you have created your account.<\/span><\/p>\n<p><a href=\"https:\/\/forum.livingwithaddisons.org\/\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">Click here to create an account and join.<\/span><\/a><\/p>\n<h2 style=\"text-align: left;\"><strong>Latest Discussions<\/strong><\/h2>\n\n<div class=\"feedzy-2f477d52aeba2a8c1dbbed94f5a7b889 feedzy-rss\"><ul><\/ul> <\/div>\n\n\n<h2 class=\"wp-block-heading\">Feature Article<\/h2>\n\n\n\n<p class=\"has-text-align-center has-pale-cyan-blue-background-color has-background has-medium-font-size wp-block-paragraph\"><strong>Four Things to know to help a friend living with Addison\u2019s Disease<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Living with an autoimmune disease like Addison\u2019s can have a huge impact on a person\u2019s life.&nbsp; However, with the help of appropriate medications and proper management techniques, patients can live an active life.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Having people by their side who are willing to learn about the effects of this condition and ways to help patients can definitely make dealing with Addison\u2019s Disease much easier.&nbsp;<\/p>\n\n\n\n<p class=\"has-text-align-right wp-block-paragraph\"><a href=\"https:\/\/blog.bensfriends.org\/4-things-to-know-to-help-a-friend-living-with-addisons-disease\/\" target=\"_blank\" rel=\"noopener\" title=\"\">Read More<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>Ben\u2019s Friends is a network of safe and supportive online communities for individuals affected by a rare disease or chronic condition. Our&nbsp;<\/em><a href=\"https:\/\/forum.livingwithaddisons.org\/\" title=\"\"><em>Living with Addison\u2019s Patients Support Community<\/em><\/a><em>&nbsp;aims to provide online support to people affected by Addison\u2019s Disease. If you think you would benefit from our community, we invite you to sign up&nbsp;<\/em><a href=\"https:\/\/forum.livingwithaddisons.org\/\" target=\"_blank\" rel=\"noopener\" title=\"\"><em>here<\/em><\/a><em>.<\/em><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Living with Addison&#8217;s\u00a0is an online patient support community that is powered by BensFriends.org, a network of patient support communities for rare diseases. Our mission at Ben\u2019s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_monsterinsights_skip_tracking":false,"footnotes":""},"class_list":["post-156","page","type-page","status-publish","hentry"],"aioseo_notices":[],"aioseo_head":"\n\t\t<!-- All in One SEO 5.0.1.1 - aioseo.com -->\n\t<meta name=\"description\" content=\"Join Addison&#039;s Disease patient support community: Connect with others, find resources, and share your journey on Addison&#039;s Disease.\" \/>\n\t<meta name=\"robots\" content=\"max-image-preview:large\" \/>\n\t<link rel=\"canonical\" href=\"https:\/\/livingwithaddisons.org\/\" \/>\n\t<meta name=\"generator\" content=\"All in One SEO (AIOSEO) 5.0.1.1\" \/>\n\t\t<meta property=\"og:locale\" content=\"en_US\" \/>\n\t\t<meta property=\"og:site_name\" content=\"Living with Addison&#039;s Patients Support Community - Support Group for people affected with Addison&#039;s Disease\" \/>\n\t\t<meta property=\"og:type\" content=\"website\" \/>\n\t\t<meta property=\"og:title\" content=\"Living with Addison\u2019s Disease? 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