Welcome Members!

Welcome to Living with Addisons Community!

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

Addison’s disease is a disorder that occurs when your body produces insufficient amounts of certain hormones produced by your adrenal glands. In Addison’s disease, your adrenal glands produce too little cortisol and often insufficient levels of aldosterone as well. One way the body keeps itself in balance is by using chemical messengers called hormones to regulate various functions. … In Addison’s disease, called primary adrenal insufficiency, the adrenal glands don’t make enough of a hormone called cortisol, or less often, a related hormone called aldosterone.

This site is a virtual community intended to be a safe place for patients and family members as young as age 12, to visit for information, discussion, venting and mutual support. Members come from many backgrounds. Some have a strong religious faith, and others no faith; some are children and others adults, rich and poor, graduate educated or taught by life. Our common denominators are that we share a life journey, and we try to help each other.

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How is Ben’s Friends Different from Social Media and Other Support Sites?

 

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

We’re interested in you as a person, and in your struggles as a rare disease patient.  But we don’t want to know your name or where you live. We won’t even allow you to use your real name when you register for one of our communities. Because when it comes to medical things, anonymity is important in our googly universe.  Your information is never shared, and your activity never tracked by adware.

When Ben’s Friends asks for the country and region you live in, that’s in case your fellow members can recommend local resources and help, and so everyone knows what kind of medical system there is where you live.  That’s important when it comes to giving and getting support. Because we are all about support, and we’re all in this together.. 

Ben’s Friends: Safe and Supportive. 
And anonymous to keep it that way.

 
 

Why create an account?

 

Posts on the different Ben’s Friends communities can be read by anyone on the internet. You can browse through the different topics and find most of the information you’re looking for but there are many things you won’t be able to do unless you create an account. These include:

Making your own posts. Although you’re able to find useful information just by reading other members’ posts, you might still have a lot of questions in your mind. Either you want to start a new topic to talk about them in detail or you want to reply to a comment on a thread. These won’t be possible unless you create a new user account.

Viewing other members’ profiles. Member profiles include information about the country or region they are from, whether they are a patient or a caregiver, and details about their disease and treatments. Maybe you came across an interesting post and you want to learn more about the member. Or maybe you’re looking for members who are from the same country as you. Having a user account allows you to see other member profiles and find information that may be relevant.  

Sending private messages. Aside from being able to post publicly and commenting on a thread, having a user account also allows you to send private messages both to other members and moderators. In case you want to discuss a topic only with a specific person, this is possible by sending private messages when you have created your account.

Click here to create an account and join.

 

Latest Discussions

  • Check out the Ben’s Friends Blog
    by ModSupport on November 30, 2021

    Be sure and check out our Blog for the latest on Ben’s friends patient communities and the Disease/Conditions that we provide patient support for: https://blog.bensfriends.org/ 1 post – 1 participant Read full topic

  • Giving Tuesday on Facebook: Part Deaux
    by Bens_Friends on November 27, 2021

    On Tues November 30 Facebook is matching all donations up to 8 million dollars. Can you help us out? We know patients are stretched thin and we are NOT asking you to participate unless you are able. BUT it’s possible that people in your social circle are able to help and with the possibility of their donation being matched by FB the opportunity for us to continue and expand our work is endless. […]

  • Can you help us out with Facebook Giving Tuesday?
    by Bens_Friends on November 24, 2021

    On Tues November 30 Facebook is matching all donations up to 8 million dollars. Can you help us out? We know patients are stretched thin and we are NOT asking you to participate unless you are able. BUT it’s possible that people in your social circle are able to help and with the possibility of their donation being matched by FB the opportunity for us to continue and expand our work is endless. […]

  • New! Caregiver Support Community
    by Bens_Friends on November 11, 2021

    We know. Being a caregiver is tough: sometimes it’s challenging physically, and it’s always difficult socially and emotionally. That’s why caregivers now have a place to meet anonymously and support each other. Today we are highlighting the news about our newly renovated CaregiverSupportCommunity.org community. Like all Ben’s Friends Communities, our Caregiver Support Community is as […]

  • Please pass this on to Your Caregiver
    by Bens_Friends on November 11, 2021

    We know. Being a caregiver is tough: sometimes it’s challenging physically, and it’s always difficult socially and emotionally. That’s why caregivers now have a place to meet anonymously and support each other. Today we are highlighting the news about our newly renovated CaregiverSupportCommunity.org community. Like all Ben’s Friends Communities, our Caregiver Support Community is as […]

  • Joining Care Givers
    by ModSupport on November 9, 2021

    Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them. CaregiverSupportCommunity.org is an online support group for patients, friends and families affected by a rare disease. is a welcoming, supportive community intended for close […]

  • Community Guidelines
    by ModSupport on November 1, 2021

    This is a Civilized Place for Public Discussion Please treat this discussion forum with the same respect you would a public park. We, too, are a shared community resource — a place to share skills, knowledge and interests through ongoing conversation. This site is a virtual community intended to be a safe place for patients and family members as young as age 13, to visit for information, […]

  • Terms Of Service
    by ModSupport on November 1, 2021

    The following terms and conditions govern all use of the Ben’s Friends website and all content, services and products available at or through the website, including, but not limited to, Ben’s Friends Forum Software, Ben’s Friends Support Forums and the Ben’s Friends domain Hosting service (“Hosting”), (taken together, the Website). The Website is owned and operated by Ben’s Friends. […]

  • About the Guidelines, Privacy, and Terms of Service category
    by ModSupport on November 1, 2021

    What is different about a Ben’s Friend’s Patient Community. Our Privacy Statement and Terms of Use 1 post – 1 participant Read full topic

  • About the Caregivers category
    by ModSupport on October 14, 2021

    Anyone whose life has been touched by a rare disease is welcome in a Ben’s Friends community. Most of our members are patients, but we have spouses and parents, besties and caregivers here as well. Caregivers sometimes need help too. Being the one responsible has its own set of challenges. Often those challenges aren’t unique to this community. Because of our diverse communities, we can […]